Session 14.D Improving outcomes and experience for people with mental health conditions
Wednesday, April 24, 2024 |
11:30 AM - 1:00 PM |
Room 2A - Level Three |
Speaker
Prof Geert Goderis
Associate Professor
Kuleuven
The Halmaal Home: The missing link between Mental Health and Primary Care.
Abstract
Objective
To develop an innovative initiative to improve (access to) somatic care for people with severe Mental Disorders (MD) and to facilitate (access to) mental health care for people living in the community.
Context
As in many countries, people suffering from (severe) mental disorders in Belgium are at increased risk of somatic pathologies such as hypertension, diabetes, chronic obstructive pulmonary disease, and transmissible diseases such as hepatitis B and C. Life expectancy is reduced by 15 to 20 years, mainly due to premature death from cardiovascular disease. These people experience difficulties in accessing quality somatic care, partly because of the overriding focus on mental disorders and persistent stigmatization. In addition, there is a persistent lack of integration and continuity between mental health care and primary care. People admitted to the hospital suffer from a lack of outpatient follow-up after discharge, and people suffering from MD in the community have difficulty accessing appropriate mental health care. Finally, in the Sint-Truiden region, the historical presence of Asster, a major psychiatric institution, has led to the settlement in the community of a large population of people suffering from mental vulnerability. Asster therefore joined forces with a local primary care practice and decided to develop an innovative initiative, the "Halmaal Home" (HH).
Methods
HH is guided by a steering committee made up of several stakeholders, such as representatives of all the mental health care organizations in the region, primary care organizations, the chief executive and medical director of the psychiatric hospital, and representatives of the local council and patient organizations. The initiative is recognized and financially supported by the Flemish government. Finally, the initiative is being supported by a consultancy agency in the development of its mission, vision, and action plan.
Results
The initiative is currently under construction and should start in April 2024. We want to focus particularly - but not exclusively - on people with severe long-term mental vulnerability. As such, we aim to position HH as an 'intermediary' point of care between the psychiatric hospital and the outpatient primary care environment, to strengthen and facilitate mutual collaboration. The interdisciplinary care team will comprise street nurses, practice nurses, physiotherapists, general practitioners, primary care psychologists, psychiatrists, and social workers. The street nurses will actively seek out homeless people in need of care. HH will also act as a 'hub' for referrals to other health and social care providers. Our service to primary care providers (GPs, nurses,...) will consist of advising on how to treat people with (severe) mental health problems and, if necessary, facilitating direct communication with and access to specialist mental health care. Our service to social and municipal services will involve facilitating communication with specialist mental health care and the timely provision of care appropriate to the situation and its urgency. Finally, we will also organize preventive activities on topics such as smoking cessation, healthy eating, and mindfulness. HH will also work closely with the neighborhood through initiatives such as neighborhood solidarity and quartering.
To develop an innovative initiative to improve (access to) somatic care for people with severe Mental Disorders (MD) and to facilitate (access to) mental health care for people living in the community.
Context
As in many countries, people suffering from (severe) mental disorders in Belgium are at increased risk of somatic pathologies such as hypertension, diabetes, chronic obstructive pulmonary disease, and transmissible diseases such as hepatitis B and C. Life expectancy is reduced by 15 to 20 years, mainly due to premature death from cardiovascular disease. These people experience difficulties in accessing quality somatic care, partly because of the overriding focus on mental disorders and persistent stigmatization. In addition, there is a persistent lack of integration and continuity between mental health care and primary care. People admitted to the hospital suffer from a lack of outpatient follow-up after discharge, and people suffering from MD in the community have difficulty accessing appropriate mental health care. Finally, in the Sint-Truiden region, the historical presence of Asster, a major psychiatric institution, has led to the settlement in the community of a large population of people suffering from mental vulnerability. Asster therefore joined forces with a local primary care practice and decided to develop an innovative initiative, the "Halmaal Home" (HH).
Methods
HH is guided by a steering committee made up of several stakeholders, such as representatives of all the mental health care organizations in the region, primary care organizations, the chief executive and medical director of the psychiatric hospital, and representatives of the local council and patient organizations. The initiative is recognized and financially supported by the Flemish government. Finally, the initiative is being supported by a consultancy agency in the development of its mission, vision, and action plan.
Results
The initiative is currently under construction and should start in April 2024. We want to focus particularly - but not exclusively - on people with severe long-term mental vulnerability. As such, we aim to position HH as an 'intermediary' point of care between the psychiatric hospital and the outpatient primary care environment, to strengthen and facilitate mutual collaboration. The interdisciplinary care team will comprise street nurses, practice nurses, physiotherapists, general practitioners, primary care psychologists, psychiatrists, and social workers. The street nurses will actively seek out homeless people in need of care. HH will also act as a 'hub' for referrals to other health and social care providers. Our service to primary care providers (GPs, nurses,...) will consist of advising on how to treat people with (severe) mental health problems and, if necessary, facilitating direct communication with and access to specialist mental health care. Our service to social and municipal services will involve facilitating communication with specialist mental health care and the timely provision of care appropriate to the situation and its urgency. Finally, we will also organize preventive activities on topics such as smoking cessation, healthy eating, and mindfulness. HH will also work closely with the neighborhood through initiatives such as neighborhood solidarity and quartering.
Biography
Prof. Dr. Geert Goderis graduated as General Practitioner in 1993 and is actually working as a GP in the psychiatric hospital Asster in Flanders, Belgium. He is a staff member at the University Hospitals Leuven, associate professor of Chronic Care at the at the KU Leuven, Department of Public Health and Primary Care and “Maître de Conférence” at the Université Libre de Bruxelles. He teaches Diabetes, COPD, Hypertension and Chronic Disease Management. His topics of interest are health care policy, multidisciplinary collaboration and service integration, with particular focus on shared care between specialized care in hospitals and primary care.
Kristina Eliashevsky
Director
Cambridge North Dumfries Ontario Health Team
Transparency or Bust: An Ontario Health Team's Experience Openly Communicating Progress and Results in a Rapid Improvement Community Pilot Project
Abstract
This oral paper will present a community-based transformative case study from the Cambridge North Dumfries Ontario Health Team (CND OHT), focusing on the transparent and collaborative approach to collecting and disseminating measures of progress, results and impact, and the benefits of this approach in a maturing locally-driven integrated care system. The CND OHT Community Mental Health and Addictions Clinic moved from co-design idea to doors open, in just three months. Over the course of the two-month pilot, 123 clients were served via 451 appointments, including virtual follow-up visits. This resulted in 23 emergency department diversions, redirecting appropriate mental health and addictions visits from the hospital. Of the 123 clients, 50% indicated that if the clinic did not exist, they would have gone to the emergency room, and 94% of clients felt that their immediate needs were adequately addressed by the clinic. Much of the success of the initiative was attributed to transparent and collaborative processes, rapid implementation, and the crucial involvement of patients and community members. Importantly, transparency extended beyond implementation, with detailed evaluation results and user-friendly infographics accessible on the Health Team's website, effectively communicating both the challenges and benefits of the program to the public. This commitment to openness not only facilitated a thorough understanding of the project's results and impact but also served as a valuable model for broader population health management initiatives. Attendees of this presentation will gain insights into the rationale behind transparent planning and evaluation, and will hear how this transparency can build trust and engagement in integrated care planning.
Biography
Kristina Eliashevsky (she/her) is the Director of the Cambridge North Dumfries Ontario Health Team. Since joining the CND OHT in 2020, she has established and coordinated the collaborative design, decision-making and implementation structures of the OHT. Ms. Eliashevsky holds a Master of Arts in Public Policy and Administration from Toronto Metropolitan University, as well as a Graduate Diploma in Professional Inquiry from Queen's University. Ms. Eliashevsky has over a decade of project management and leadership experience in health system improvement across a variety of sectors including long-term care and acute care.
Lindsay Beuermann
Performance Monitoring And Quality Manager
Cambridge North Dumfries Ontario Health Team
Co-Presenting: Transparency or Bust: An Ontario Health Team's Experience Openly Communicating Progress and Results in a Rapid Improvement Community Pilot Project
Biography
Lindsay Beuermann (she/her) is the Performance Monitoring and Quality Manager at the Cambridge North Dumfries Ontario Health Team. In this role, she works with OHT members to enable and influence performance improvements within Cambridge and North Dumfries through advanced analytics and strong information-sharing practices. She has a Master's degree in Health Evaluation from the University of Waterloo. Prior to joining the CND OHT, she worked in primary care managing research, evaluation and quality improvement initiatives in a large academic family health team.
Dr Justine Giosa
Adjunct Professor
University of Waterloo
Integrating mental health conversations into home and community-based healthcare practice: making it ‘real’ through co-design with care providers across Canada
Abstract
Background: The Canadian healthcare system tends to focus on older adults’ physical needs, which leads to missed opportunities for integrated mental health support, care and treatment. Health and social care providers who work in community settings develop trusting therapeutic relationships with their clients, often in home environments—providing many insights into personal circumstances. These providers are well-positioned to talk about mental health with their clients, but these conversations are often avoided due to lack of evidence-based resources and training to support skill-building, confidence, and relevant referral knowledge.
Aims: The overall aim of this study is to co-design and test an evidence-based approach to mental health conversations between providers, older adults, and family caregivers at the point-of-care in home and community settings across Canada. The objective for Phase 1 (presented at ICIC 2023) was to identify and adapt an evidence-based model describing mental health along a continuum. The objective for Phase 2 (focus for ICIC 2024) was to co-design point-of-care conversations rooted in the model from Phase 1. In Phase 3, the objective is to integrate the conversations into existing community care practices and test for feasibility.
Methods: Our pan-Canadian research team including a working group of experts-by-experience (n=30) is conducting a 3-phase participatory, mixed-methods study over three years. Phase 1 involved four online workshops (n=59) and surveys (n=1069) with aging Canadians to adapt an existing Mental Health Continuum model. Phase 2 involved 7 co-design workshops with home and community care providers (n=84) in rural and urban communities across Ontario, British Columbia and Nova Scotia. Through interactive ‘gamestorming’ activities, participants co-created resources, tools, education and training needed to facilitate mental health conversations at the point-of-care. Workshop artefacts and transcripts were analyzed using framework analysis. Phase 3 involves pilot and feasibility testing of the co-designed conversations from phase 2.
Results: An adapted model called the Mental Health Continuum for Aging Canadians (MHCAC) resulted from Phase 1. Phase 2 results include: 1) A conversation map to guide decisions to support tailoring of mental health conversations to an older adults’ unique circumstances (e.g., family caregiver presence; length of time on service; involvement of other providers); 2) A MHCAC toolkit including design blueprints for physical (e.g., magnets, pamphlets), digital (e.g., videos, podcast) and allegorical (e.g., living plants representing client well-being) formats; and 3) An implementation framework identifying foundational elements consistent across workshops (e.g., in-service training on MHCAC for providers) and variations by geography (e.g., paper-based preferences for rural sites, climate concerns for coastal provinces). Phase 3 findings are forthcoming and will be a focus for ICIC 2025.
Learnings: Engaging experts-by-experience in co-designing applied care solutions is essential to producing knowledge that fits the real-world context. A multidimensional strategy rooted in consistent evidence, but with room for flexibility in approach, is necessary to enable mental health conversations at the point-of-care that will meet and respond to the diverse needs and circumstances of Canada’s aging population.
Next Steps: Phase 3 is underway and will be ongoing through 2024 with 15 collaborating community organizations across Canada.
Aims: The overall aim of this study is to co-design and test an evidence-based approach to mental health conversations between providers, older adults, and family caregivers at the point-of-care in home and community settings across Canada. The objective for Phase 1 (presented at ICIC 2023) was to identify and adapt an evidence-based model describing mental health along a continuum. The objective for Phase 2 (focus for ICIC 2024) was to co-design point-of-care conversations rooted in the model from Phase 1. In Phase 3, the objective is to integrate the conversations into existing community care practices and test for feasibility.
Methods: Our pan-Canadian research team including a working group of experts-by-experience (n=30) is conducting a 3-phase participatory, mixed-methods study over three years. Phase 1 involved four online workshops (n=59) and surveys (n=1069) with aging Canadians to adapt an existing Mental Health Continuum model. Phase 2 involved 7 co-design workshops with home and community care providers (n=84) in rural and urban communities across Ontario, British Columbia and Nova Scotia. Through interactive ‘gamestorming’ activities, participants co-created resources, tools, education and training needed to facilitate mental health conversations at the point-of-care. Workshop artefacts and transcripts were analyzed using framework analysis. Phase 3 involves pilot and feasibility testing of the co-designed conversations from phase 2.
Results: An adapted model called the Mental Health Continuum for Aging Canadians (MHCAC) resulted from Phase 1. Phase 2 results include: 1) A conversation map to guide decisions to support tailoring of mental health conversations to an older adults’ unique circumstances (e.g., family caregiver presence; length of time on service; involvement of other providers); 2) A MHCAC toolkit including design blueprints for physical (e.g., magnets, pamphlets), digital (e.g., videos, podcast) and allegorical (e.g., living plants representing client well-being) formats; and 3) An implementation framework identifying foundational elements consistent across workshops (e.g., in-service training on MHCAC for providers) and variations by geography (e.g., paper-based preferences for rural sites, climate concerns for coastal provinces). Phase 3 findings are forthcoming and will be a focus for ICIC 2025.
Learnings: Engaging experts-by-experience in co-designing applied care solutions is essential to producing knowledge that fits the real-world context. A multidimensional strategy rooted in consistent evidence, but with room for flexibility in approach, is necessary to enable mental health conversations at the point-of-care that will meet and respond to the diverse needs and circumstances of Canada’s aging population.
Next Steps: Phase 3 is underway and will be ongoing through 2024 with 15 collaborating community organizations across Canada.
Biography
Dr. Justine Giosa is the Scientific Director of the SE Research Centre who oversees a diverse research portfolio and leads a team of researchers, ensuring they are supported to execute high-quality research, evaluation and knowledge mobilization work. As a research scientist and healthcare leader, Dr. Giosa has a 10-year track record of bridging the knowledge-to-practice gap in aging research and healthcare delivery. Her research focuses on integrated geriatric care planning and delivery across the continuum of care and authentic engagement of older adults, family/friend caregivers and health and social care providers in health system change.
Katherine Hastings
Graduate Student
University of British Columbia
Service use patterns among youth reporting suicide ideation in an integrated youth service network in British Columbia, Canada
Abstract
Background: Addressing suicidal behaviors (i.e., ideation or thoughts, planning, or attempt) among youth is increasingly complex and often requires a comprehensive and integrated approach to care. Integrated youth services (IYS) are a growing model of care in which youth can access a range of non-stigmatizing health and social services all delivered within a single location. In British Columbia (BC), Foundry is one of the largest IYS networks in Canada. To date, little is known about the demographics and help-seeking behaviors among youth experiencing suicidal behaviors in IYS. In this study, we examine service patterns and characteristics of youth reporting suicide ideation to better understand and address their IYS care needs.
Methods: We used cross-sectional data from Foundry from May 2018 to January 2023, which includes linked demographic, health, and physician-reported survey data aggregated from 13 IYS centres across BC. Survey data is collected during an initial visit to Foundry. Descriptive statistics and bivariate analyses by various demographics, geographic, and service use variables were compared by youth who reported having suicide ideation (SI) within the ‘past month’ of their visit as compared to youth who reported ‘never’ having SI. Standardized differences (SD) were calculated to determine statistical significance between groups. We examined the proportion of youth reporting SI coming to Foundry by month over the study period. We also examined these trends by certain subpopulations such as gender, sexual identity, race, and age group.
Results: A total of 8,347 individuals were included in the study. Of this sample, a total of 6,021 (72%) had reported any lifetime SI. A total of 2,975 (36%) individuals reported having SI in ‘the past month’. We found that youth experiencing SI were more likely to be gender diverse (13% with SI vs. 4% without SI), identified as sexual minorities (45% vs. 22%), Indigenous (11% vs. 8%), insecure housing (8% vs. 4%), and reported as having ‘not always lived with their parents’ (42% vs. 30%) as compared to youth who never had SI. On average, youth reporting SI in the past month had more contact with Foundry services than those without SI (9.1 vs. 5.5 visits), and had accessed other mental health services in the last year (43% vs. 21%). Youth with SI in the past month also had higher distress scores (as measured by the Kessler Psychological Distress score), with 77% having a score over 30 (i.e., ‘likely to have a severe mental health disorder’). We found no substantial change in the overall proportion of youth reporting suicide ideation over the study period, but trends by subpopulations revealed slight increases in the proportion of ‘past month’ suicide ideation among girls and visible minority groups in the last 1-2 few years.
Discussion: Many youth seeking IYS services reported having suicide ideation (or thoughts), particularly within the past month of the visit, indicating a major opportunity for low-barrier, early intervention. Our findings characterize those who may be disproportionately impacted and their current help-seeking behaviors within IYS to identify service gaps and needs for targeted intervention.
Methods: We used cross-sectional data from Foundry from May 2018 to January 2023, which includes linked demographic, health, and physician-reported survey data aggregated from 13 IYS centres across BC. Survey data is collected during an initial visit to Foundry. Descriptive statistics and bivariate analyses by various demographics, geographic, and service use variables were compared by youth who reported having suicide ideation (SI) within the ‘past month’ of their visit as compared to youth who reported ‘never’ having SI. Standardized differences (SD) were calculated to determine statistical significance between groups. We examined the proportion of youth reporting SI coming to Foundry by month over the study period. We also examined these trends by certain subpopulations such as gender, sexual identity, race, and age group.
Results: A total of 8,347 individuals were included in the study. Of this sample, a total of 6,021 (72%) had reported any lifetime SI. A total of 2,975 (36%) individuals reported having SI in ‘the past month’. We found that youth experiencing SI were more likely to be gender diverse (13% with SI vs. 4% without SI), identified as sexual minorities (45% vs. 22%), Indigenous (11% vs. 8%), insecure housing (8% vs. 4%), and reported as having ‘not always lived with their parents’ (42% vs. 30%) as compared to youth who never had SI. On average, youth reporting SI in the past month had more contact with Foundry services than those without SI (9.1 vs. 5.5 visits), and had accessed other mental health services in the last year (43% vs. 21%). Youth with SI in the past month also had higher distress scores (as measured by the Kessler Psychological Distress score), with 77% having a score over 30 (i.e., ‘likely to have a severe mental health disorder’). We found no substantial change in the overall proportion of youth reporting suicide ideation over the study period, but trends by subpopulations revealed slight increases in the proportion of ‘past month’ suicide ideation among girls and visible minority groups in the last 1-2 few years.
Discussion: Many youth seeking IYS services reported having suicide ideation (or thoughts), particularly within the past month of the visit, indicating a major opportunity for low-barrier, early intervention. Our findings characterize those who may be disproportionately impacted and their current help-seeking behaviors within IYS to identify service gaps and needs for targeted intervention.
Biography
Katie is a PhD Student in the School of Population and Public Health at UBC in Canada. She partnered with Foundry to better understand how integrated youth services can improve access and quality of mental healthcare for youth and adolescents. Her research interests include youth violence prevention, particularly youth suicide, with the goal to co-design a suicide care framework within Foundry to establish a better continuum of care among at-risk youth. She looks forward to working alongside youth and community partners throughout this work, and to expanding her research repertoire in more youth-focused and co-design approaches to science.
Mr Alejandro Gil-Salmerón
Senior Researcher
International Foundation for Integrated Care (IFIC)
CO-CAPTAIN: Cancer Prevention Among Individuals with Mental Ill-Health
Abstract
Introduction:
While issues concerning mental health are of great importance, they often overshadow physical problems faced by people with mental ill-health. Cancer is one of the most common causes of death among this population.
Target audience
The CO-CAPTAIN project presents valuable insights for policymakers, professionals, and academics invested in understanding integrated cancer care.
Involvement of Stakeholders in the Project:
Active participation of various stakeholders will define the CO-CAPTAIN project in the first phase of the project. In this first phase, a qualitative study design has been conducted interviewing key stakeholders to identify cancer care inequalities and barriers but also points to be strengthened, guide the co-design sessions of the features of model for primary cancer prevention.
Intervention:
The CO-CAPTAIN project aims to outline a sound knowledge translation strategy to prevent cancer for individuals with mental ill-health by implementing and upscaling navigation services to overcome cancer care inequalities and deliver cost-effective primary cancer prevention for individuals with mental ill-health conditions.
Results:
The qualitative interviews will help analysing the specific health needs and the barriers for accessing and benefit from cancer primary prevention services and programs for individuals with mental at system, provider, and individual levels. Results from the interviews are being analysed with qualitative analysis methodologies and the results of the co-design will be anticipated by April 2024.
Lessons Learned for the International Audience:
CO-CAPTAIN addresses the strengthening coordination and continuity of care adopting tailored cancer prevention strategies in mental health services, to overcome potential barriers that prevent individuals with mental ill-health from finding the most appropriated care, as a crucial step for delivering high-quality preventive cancer care services. It addresses unique challenges across diverse local contexts, offering valuable lessons for an international audience grappling with similar issues with fragmented care systems and groups with complex needs.
Next Steps:
After co-adapting the features of the patient navigator for cancer prevention tailored to the specific needs of individuals with mental ill-health and identify implementation strategies for the local communities in the 4 pilot sites, CO-CAPTAIN will conduct a pilot implementation of the intervention for cancer prevention in Austria, Greece, Poland, and Spain.
While issues concerning mental health are of great importance, they often overshadow physical problems faced by people with mental ill-health. Cancer is one of the most common causes of death among this population.
Target audience
The CO-CAPTAIN project presents valuable insights for policymakers, professionals, and academics invested in understanding integrated cancer care.
Involvement of Stakeholders in the Project:
Active participation of various stakeholders will define the CO-CAPTAIN project in the first phase of the project. In this first phase, a qualitative study design has been conducted interviewing key stakeholders to identify cancer care inequalities and barriers but also points to be strengthened, guide the co-design sessions of the features of model for primary cancer prevention.
Intervention:
The CO-CAPTAIN project aims to outline a sound knowledge translation strategy to prevent cancer for individuals with mental ill-health by implementing and upscaling navigation services to overcome cancer care inequalities and deliver cost-effective primary cancer prevention for individuals with mental ill-health conditions.
Results:
The qualitative interviews will help analysing the specific health needs and the barriers for accessing and benefit from cancer primary prevention services and programs for individuals with mental at system, provider, and individual levels. Results from the interviews are being analysed with qualitative analysis methodologies and the results of the co-design will be anticipated by April 2024.
Lessons Learned for the International Audience:
CO-CAPTAIN addresses the strengthening coordination and continuity of care adopting tailored cancer prevention strategies in mental health services, to overcome potential barriers that prevent individuals with mental ill-health from finding the most appropriated care, as a crucial step for delivering high-quality preventive cancer care services. It addresses unique challenges across diverse local contexts, offering valuable lessons for an international audience grappling with similar issues with fragmented care systems and groups with complex needs.
Next Steps:
After co-adapting the features of the patient navigator for cancer prevention tailored to the specific needs of individuals with mental ill-health and identify implementation strategies for the local communities in the 4 pilot sites, CO-CAPTAIN will conduct a pilot implementation of the intervention for cancer prevention in Austria, Greece, Poland, and Spain.
Biography
Alejandro Gil-Salmerón is senior researcher at the International Foundation for Integrated Care. He is an experienced researcher having worked in more than 20 projects funded by different international programmes over the past 6 years, focusing on strengthening the delivery of person-centred care in health and social care systems for more disadvantaged groups or complex needs. Alejandro joined IFIC in early 2021 where has been leading the role of IFIC in different projects funded by the European Commission. Alejandro is a qualified social worker and in he also counts with experience teaching at the University in different degrees and Masters.
Chair
Ms
Niamh Daly Day
Digital Marketing and Events Officer
International Foundation for Integrated Care (IFIC)
