2.3 Poster Display Session
| Thursday, June 4, 2026 |
| 5:10 PM - 6:10 PM |
| Poster Screen 3 - Human Biology |
Speaker
Mr Thorsten Gegenwarth
Helga Keil-Bastendorff Foundation
Bridging Support and Employment: A Multi-Phase Inclusive Work Model Using Inclusive Work Units, Vocational Coaching, Corporate Partnerships, and Person-Centred Transitions to Empower Young Adults with Disabilities in Austria’s Labour Market
Abstract
Arbeit.inklusiv is an innovative three-year pilot project designed to build sustainable, person-centred pathways from protected settings into the primary labour market for young adults with disabilities. Addressing the limited permeability of traditional workshops and day structures, the project introduces a structured transition model combining activation, supported employment, and long-term integration in real working environments. The programme is implemented across three phases. The Preparation Phase (3–6 months) focuses on psychosocial stabilisation, case management, skills development, and practical orientation within a dedicated transition facility. Participants receive diagnostic clarification, social-work support, and targeted competence-building through modular workshops and trial work sessions tailored to individual strengths. In the Integrated Employment Phase, participants are formally employed by ITA GmbH and work in Inclusive Work Units embedded in partner companies including IKEA , UNO City GmbH, and SDPRO GmbH. These Inclusive Work Units provide small-scale, supported teams where participants work alongside trained mentors who offer structured guidance, adaptation of tasks, and daily stabilisation to ensure safe, productive engagement in real economic settings.
The Transition Phase prepares participants for long-term employment—ideally within the company where the Inclusive Work Unit was implemented. This includes ongoing coaching, gradual reduction of support, coordination with labour-market services, and structured referral to external assistance such as job coaching or Arbeitsassistenz.
Arbeit.inklusiv strengthens companies’ capacity for inclusive employment through workplace adaptation, staff training, and financial incentives. It offers a scalable model demonstrating how structured support, real work experience, and strategic partnerships can create lasting employment opportunities for people with disabilities.
The Transition Phase prepares participants for long-term employment—ideally within the company where the Inclusive Work Unit was implemented. This includes ongoing coaching, gradual reduction of support, coordination with labour-market services, and structured referral to external assistance such as job coaching or Arbeitsassistenz.
Arbeit.inklusiv strengthens companies’ capacity for inclusive employment through workplace adaptation, staff training, and financial incentives. It offers a scalable model demonstrating how structured support, real work experience, and strategic partnerships can create lasting employment opportunities for people with disabilities.
Paper Number
1210
Biography
Managing Director, Thorsten holds a degree in Special Needs Education and History, an academic qualification as a Conductive Multitherapy Conductor, and an MBA from Milton Keynes, UK. He has extensive leadership experience across early childhood education, integrative and special schools, vocational training, and disability-inclusive sports programs. Since 2005 he has managed, developed, and led organisations and multidisciplinary teams focused on inclusion, rehabilitation, and educational transitions. His work spans quality management, organisational development, and programme design for children, young people, and NEET populations. He has contributed to seven European projects in conductive education and is an experienced lecturer and conference speaker.
Dr Dafna Guttman
Sheba Medical Center
A Composite Motor Imagery Score for Children with Cerebral Palsy: Towards a Clinically Feasible Assessment of the Hand Laterality Test
Abstract
Introduction: Children with Cerebral Palsy (CP) demonstrate impaired motor planning and performance. Motor imagery, the ability to create a sensory representation of movement without moving, is commonly assessed via mental rotation tasks like the Hand Laterality Task (HLT). However, evidence regarding performance of HLT in children with CP is inconclusive and HLT scoring HLT varies across studies.
Objective: To examine motor imagery performance in children with CP compared to typically-developing (TD) children, and develop a composite motor imagery score to differentiate between the groups.
Methods: 37 participants (17 CP, 20 TD, age 10-20y) completed the HLT, judging hand laterality at various rotation angles. Mixed-effects models were used to compare HLT outcomes (reaction time [RT] and accuracy) across groups. A composite score was developed, and logistic regression models were applied to differentiate between the groups. Model performance was evaluated using internal validation with 100 random 70/30 train-test partitions. Classification metrics (area under the curve [AUC], accuracy, sensitivity, specificity, precision, F1-score) were averaged across iterations.
Results: Children with CP exhibited lower accuracy (p=0.002) and higher RT variability (p<.001) than TD children, with no differences in RT (p=0.46). A composite score combining accuracy and RT variability achieved the best between-group separation. Across 100 random splits the model demonstrated AUC=0.89±0.09, accuracy=81%±11%, sensitivity=81%±19, specificity=84%±18).
Conclusions: The composite score identified RT variability as a distinguishing feature for motor imagery performance in children with CP, consolidating previous literature. Further research using the composite motor imagery score can assist in developing targeted rehabilitation strategies for children with CP.
Objective: To examine motor imagery performance in children with CP compared to typically-developing (TD) children, and develop a composite motor imagery score to differentiate between the groups.
Methods: 37 participants (17 CP, 20 TD, age 10-20y) completed the HLT, judging hand laterality at various rotation angles. Mixed-effects models were used to compare HLT outcomes (reaction time [RT] and accuracy) across groups. A composite score was developed, and logistic regression models were applied to differentiate between the groups. Model performance was evaluated using internal validation with 100 random 70/30 train-test partitions. Classification metrics (area under the curve [AUC], accuracy, sensitivity, specificity, precision, F1-score) were averaged across iterations.
Results: Children with CP exhibited lower accuracy (p=0.002) and higher RT variability (p<.001) than TD children, with no differences in RT (p=0.46). A composite score combining accuracy and RT variability achieved the best between-group separation. Across 100 random splits the model demonstrated AUC=0.89±0.09, accuracy=81%±11%, sensitivity=81%±19, specificity=84%±18).
Conclusions: The composite score identified RT variability as a distinguishing feature for motor imagery performance in children with CP, consolidating previous literature. Further research using the composite motor imagery score can assist in developing targeted rehabilitation strategies for children with CP.
Paper Number
216
Biography
Dr. Dafna Guttman is a Senior Physician and Deputy Director of the Pediatric Rehabilitation Department at Sheba Medical Center’s Edmond & Lily Safra Children’s Hospital. Dual-specialized in Pediatrics and Physical Medicine & Rehabilitation, she expertises in treating cerebral palsy, spinal cord injuries, and oncological cases. Dr. Guttman is a dedicated advocate for transitional medicine, focusing on supporting adolescents with disabilities as they move into adult life and medical care
Ms Charlotte Lambrechts
KU Leuven
Passive muscle stiffness in relation to muscle size and quality in children with and without cerebral palsy
Abstract
Introduction:The medial gastrocnemius (MG) of children with spastic cerebral palsy (SCP) is characterized by increased tissue stiffness and reduced muscle size and intrinsic quality compared to typically developing (TD) children. However, the relationships between these muscle properties remain unclear. This study used muscle imaging to compare stiffness, size, and quality between groups, and explored how stiffness relates to muscle size and quality.
Participants and methods:Twenty-two children with SCP (median age 8.6±4.0 years; GMFCS I/II/III:12/5/5) and 18 TD children (median age 10.7±4.1 years) were included. Passive stiffness (shear modulus (SM), kPa) of the mid-MG muscle belly was measured using shear wave elastography at neutral ankle position. Three-dimensional freehand ultrasound quantified MG size and quality, including normalized muscle volume (nMV, ml/m*kg), belly length (nML, mm/m), cross-sectional area (nCSA, mm²/kg), and echo-intensity (EI, gray-scale; indicator of intrinsic quality). Group differences were tested using the Mann–Whitney U test, and associations were assessed using Spearman’s rho (ρ).
Results:Children with SCP showed higher muscle stiffness and reduced muscle size and quality compared to TD children (SM:p<0.001, nMV:p<0.001, nCSA:p=0.008, nML:p<0.001, EI:p=0.040). In children with SCP, SM was weakly associated with nML (ρ=-0.462,p=0.046). In TD children, SM correlated weakly with EI (ρ=0.476,p=0.030).
Conclusion:This study confirmed increased MG stiffness and reduced muscle size and quality in children with SCP. The weak correlations between stiffness and either muscle length or quality suggest partially shared underlying mechanisms, but also indicate that passive stiffness is influenced by additional factors. These findings highlight the multifactorial nature of muscle stiffness in SCP and TD.
Participants and methods:Twenty-two children with SCP (median age 8.6±4.0 years; GMFCS I/II/III:12/5/5) and 18 TD children (median age 10.7±4.1 years) were included. Passive stiffness (shear modulus (SM), kPa) of the mid-MG muscle belly was measured using shear wave elastography at neutral ankle position. Three-dimensional freehand ultrasound quantified MG size and quality, including normalized muscle volume (nMV, ml/m*kg), belly length (nML, mm/m), cross-sectional area (nCSA, mm²/kg), and echo-intensity (EI, gray-scale; indicator of intrinsic quality). Group differences were tested using the Mann–Whitney U test, and associations were assessed using Spearman’s rho (ρ).
Results:Children with SCP showed higher muscle stiffness and reduced muscle size and quality compared to TD children (SM:p<0.001, nMV:p<0.001, nCSA:p=0.008, nML:p<0.001, EI:p=0.040). In children with SCP, SM was weakly associated with nML (ρ=-0.462,p=0.046). In TD children, SM correlated weakly with EI (ρ=0.476,p=0.030).
Conclusion:This study confirmed increased MG stiffness and reduced muscle size and quality in children with SCP. The weak correlations between stiffness and either muscle length or quality suggest partially shared underlying mechanisms, but also indicate that passive stiffness is influenced by additional factors. These findings highlight the multifactorial nature of muscle stiffness in SCP and TD.
Paper Number
1034
Biography
I am a PhD student at the University of Leuven, where my research investigates the muscular characteristics of the medial gastrocnemius in children with cerebral palsy and typically developing peers. My work focuses on quantifying muscle composition and architecture, with the aim of advancing our understanding of how altered muscle properties contribute to functional impairments and inform targeted rehabilitation strategies.
PhD August Landerholm
Mälardalen University
Decoding Disability: Examining AI Hallucination Patterns in ICF-Based Participation Research for Children with Intellectual and Developmental Disabilities
Abstract
Introduction
Automated ICF coding using large language models (LLMs) remains an unexplored approach in childhood disability research. This study investigates whether an LLM can reliably interpret parental descriptions of children's functioning by examining hallucination patterns in AI-generated ICF codes in a Swedish pediatric cohort.
Participants and Methods
We applied Gemini 2.5 to automatically code parental free-text responses from 108 Swedish children and adolescents with disabilities (ages 5-18 years) across 20 standardized questions describing functional limitations and participation barriers. Prompts explicitly instructed the model to use only official Swedish ICF codes. Hallucinations were conservatively defined as structurally invalid codes and identified through cross-referencing with the validated Swedish ICF codebook.
Results
Of 3,821 total AI-generated code instances, 184 (4.8%) were hallucinations across 18 unique invalid codes, while 3,637 (95.2%) were structurally valid codes. Under-specifications (codes truncated at chapter level) comprised 72% of hallucinations, while over-specifications (valid codes extended with additional digits) comprised 28%. Activities and Participation codes (d-codes) were most susceptible to errors, accounting for 61% of invalid outputs. Hallucination frequency varied substantially across questions, ranging from 0 to 26 per question.
Conclusion
AI-generated hallucinations were uncommon but followed systematic patterns, with under-specification errors predominating and d-codes showing highest vulnerability. Question characteristics appear to influence hallucination risk. This study used a conservative technical definition and did not evaluate semantic appropriateness of valid codes. Until AI decision-making becomes interpretable, robust validation frameworks combining automated verification and clinical expertise remain essential for ICF-based pediatric rehabilitation research.
Automated ICF coding using large language models (LLMs) remains an unexplored approach in childhood disability research. This study investigates whether an LLM can reliably interpret parental descriptions of children's functioning by examining hallucination patterns in AI-generated ICF codes in a Swedish pediatric cohort.
Participants and Methods
We applied Gemini 2.5 to automatically code parental free-text responses from 108 Swedish children and adolescents with disabilities (ages 5-18 years) across 20 standardized questions describing functional limitations and participation barriers. Prompts explicitly instructed the model to use only official Swedish ICF codes. Hallucinations were conservatively defined as structurally invalid codes and identified through cross-referencing with the validated Swedish ICF codebook.
Results
Of 3,821 total AI-generated code instances, 184 (4.8%) were hallucinations across 18 unique invalid codes, while 3,637 (95.2%) were structurally valid codes. Under-specifications (codes truncated at chapter level) comprised 72% of hallucinations, while over-specifications (valid codes extended with additional digits) comprised 28%. Activities and Participation codes (d-codes) were most susceptible to errors, accounting for 61% of invalid outputs. Hallucination frequency varied substantially across questions, ranging from 0 to 26 per question.
Conclusion
AI-generated hallucinations were uncommon but followed systematic patterns, with under-specification errors predominating and d-codes showing highest vulnerability. Question characteristics appear to influence hallucination risk. This study used a conservative technical definition and did not evaluate semantic appropriateness of valid codes. Until AI decision-making becomes interpretable, robust validation frameworks combining automated verification and clinical expertise remain essential for ICF-based pediatric rehabilitation research.
Paper Number
778
Biography
August Landerholm is a PhD candidate in Physiotherapy at Mälardalen University, Sweden.
His research focuses on physical activity participation barriers in adolescents with disabilities, applying ICF frameworks and digital health tools. While his main field is disability research and participation, AI-tools and their niche use cases in complex populations that deviate from traditional training data sets are a big interest.
PhD Katarina Lauruschkus
Researcher
Lund University
Participation in physical activities and sleep routines in children and young people with disabilities: a study protocol
Abstract
Introduction:
Children and young people with autism, intellectual and/or physical disabilities participate less in physical activity than their peers, which negatively affects health and wellbeing. Sleep difficulties are also common and may be alleviated through increased physical activity. Physical Activity on Prescription (PAP) is a person-centred and evidence-based intervention shown to increase participation in physical activity. This research project aims to promote participation in physical activity and improve sleep routines among children and youth with disabilities by deepening knowledge about current practices and testing the feasibility of a person-centred intervention involving PAP.
Participants and Methods:
The study employs a mixed methods design across four sub-studies. (1) A national web-based survey will map knowledge, attitudes, and use of PAP, as well as perceptions of sleep and physical activity among professionals in schools and habilitation services. (2) Semi-structured interviews with children and youth aged 6–24 years will explore experiences of participation in physical activity, sleep, and rest. (3) Professionals within schools, habilitation, and student health services will be interviewed individually or in focus groups regarding their experiences promoting physical activity and healthy sleep. (4) A feasibility study will test a person-centred PAP-based intervention, including staff training and follow-up, to enhance participation and improve sleep routines. Quantitative data will be analysed descriptively and inferentially, and qualitative data by thematic analysis.
This research project addresses a clear knowledge gap and will generate new knowledge on how to support participation in physical activity and healthy sleep routines among children and youth with disabilities.
Children and young people with autism, intellectual and/or physical disabilities participate less in physical activity than their peers, which negatively affects health and wellbeing. Sleep difficulties are also common and may be alleviated through increased physical activity. Physical Activity on Prescription (PAP) is a person-centred and evidence-based intervention shown to increase participation in physical activity. This research project aims to promote participation in physical activity and improve sleep routines among children and youth with disabilities by deepening knowledge about current practices and testing the feasibility of a person-centred intervention involving PAP.
Participants and Methods:
The study employs a mixed methods design across four sub-studies. (1) A national web-based survey will map knowledge, attitudes, and use of PAP, as well as perceptions of sleep and physical activity among professionals in schools and habilitation services. (2) Semi-structured interviews with children and youth aged 6–24 years will explore experiences of participation in physical activity, sleep, and rest. (3) Professionals within schools, habilitation, and student health services will be interviewed individually or in focus groups regarding their experiences promoting physical activity and healthy sleep. (4) A feasibility study will test a person-centred PAP-based intervention, including staff training and follow-up, to enhance participation and improve sleep routines. Quantitative data will be analysed descriptively and inferentially, and qualitative data by thematic analysis.
This research project addresses a clear knowledge gap and will generate new knowledge on how to support participation in physical activity and healthy sleep routines among children and youth with disabilities.
Paper Number
1221
Biography
Bibliography
Katarina Lauruschkus is a Paediatric Physiotherapist and Senior Lecturer in Health Sciences at Kristianstad University, Sweden. She has extensive professional experience from the Child and Habilitation Services, where she has worked with children and young people with disabilities. Her research focuses on participation in physical activity, sedentary behaviour and sleep routines for and with people with disabilities across the lifespan, for children with obesity and childhood cancer survivors, with an emphasis on promoting inclusion and health equity. Katarina Lauruschkus leads and collaborates on national and international research initiatives and serves as the EACD Swedish National Coordinator.
Dr Hercules Leite
Universidade Federal De Minas Gerais
Epidemiology of cerebral palsy and age of diagnosis in Latin America: Preliminary findings of the Latin American Cerebral Palsy Register (LATAM-CPR)
Abstract
Objective: Epidemiological data on cerebral palsy (CP) remain scarce across Latin America. The LATAM-CPR was launched in 2023 as part of the Global Registry of CP in LMCs (GLMCPR). This study presents preliminary LATAM-CPR results on motor characteristics and age at CP diagnosis in participating LMCs.
Participants and Methods: The LATAM-CPR project uses institutional and population surveillance to register individuals with cerebral palsy (CP) in participating registries. Registries in Argentina (2021), Brazil (2024), Colombia (2024), and Mexico (2023) contribute data. From October 2021 to September 2025, 1934 individuals with confirmed CP (n=1667 aged 0–18 years, n=1002 male) were registered. Essential variables were collected using validated forms. Descriptive and chi-square analyses were performed (p=0.05).
Results: Of 1934 individuals with CP, 526 (27.2%) were from Argentina, 1098 (56.8%) Brazil, 154 (8.0%) Colombia, and 156 (8.1%) Mexico; 1224 (63.3%) were under 10 years. Spastic CP predominated: Argentina 469 (89.2%), Brazil 801 (73.0%), Colombia 126 (81.8%), Mexico 101 (64.7%). Most cases were bilateral: Argentina 375 (80.0%), Brazil 644 (80.4%), Colombia 94 (74.6%), Mexico 122 (78.2%). Mobility limitations (GMFCS III–V) affected 7/10 children: Argentina 406 (77.2%), Brazil 754 (68.7%), Colombia 109 (70.8%), Mexico 112 (71.8%). Early diagnosis (<6 months) was 33.1% overall, varying by country (p=0.02).
Conclusion: Preliminary LATAM-CPR data indicate early diagnosis is common in individuals with CP attending rehabilitation institutions and with severe motor impairment
Participants and Methods: The LATAM-CPR project uses institutional and population surveillance to register individuals with cerebral palsy (CP) in participating registries. Registries in Argentina (2021), Brazil (2024), Colombia (2024), and Mexico (2023) contribute data. From October 2021 to September 2025, 1934 individuals with confirmed CP (n=1667 aged 0–18 years, n=1002 male) were registered. Essential variables were collected using validated forms. Descriptive and chi-square analyses were performed (p=0.05).
Results: Of 1934 individuals with CP, 526 (27.2%) were from Argentina, 1098 (56.8%) Brazil, 154 (8.0%) Colombia, and 156 (8.1%) Mexico; 1224 (63.3%) were under 10 years. Spastic CP predominated: Argentina 469 (89.2%), Brazil 801 (73.0%), Colombia 126 (81.8%), Mexico 101 (64.7%). Most cases were bilateral: Argentina 375 (80.0%), Brazil 644 (80.4%), Colombia 94 (74.6%), Mexico 122 (78.2%). Mobility limitations (GMFCS III–V) affected 7/10 children: Argentina 406 (77.2%), Brazil 754 (68.7%), Colombia 109 (70.8%), Mexico 112 (71.8%). Early diagnosis (<6 months) was 33.1% overall, varying by country (p=0.02).
Conclusion: Preliminary LATAM-CPR data indicate early diagnosis is common in individuals with CP attending rehabilitation institutions and with severe motor impairment
Paper Number
291
Biography
Dr Hércules Ribeiro Leite is a physiotherapist, researcher, and lecturer at the Federal University of Minas Gerais (UFMG), Brazil, and an associate member of CanChild (Canada). His work focuses on developing and implementing evidence-based interventions to promote participation, physical literacy, and functional outcomes for children and adolescents with cerebral palsy. He coordinates the Brazilian Cerebral Palsy Registry (BrCPR) and leads collaborative initiatives that connect research, clinical practice, and public engagement to advance inclusive health and rehabilitation practices in Latin America.
Dr Nancy Lennon
Nemours Children's Hospital
High Intensity Outpatient Physical Therapy After Multi-Level Surgery (MLS) in Youth with Cerebral Palsy (CP): Association with Gait and Mobility Outcomes
Abstract
Introduction
Multi-level surgery (MLS) can improve motor function and gait in youth with cerebral palsy (CP) though muscle strength and motor abilities decline in the early post-op phase. Physical therapy (PT) is recommended to help children regain strength and function. In outpatient settings, high-intensity doses of PT (≥ 3x/week) can improve motor function during early recovery. The benefits of high-intensity outpatient PT (HIO-PT) are not well-described. We examined referral trends and outcomes for youth who participated in postoperative HIO-PT compared to those who did not.
Participants and Methods: This IRB-approved retrospective study examined youth with spastic CP, MLS, age 4-21, Gross Motor Function Classification System (GMFCS) levels I-IV, and gait analyses. Outcome measures included the Pediatric Outcomes Data Collection Instrument (PODCI), Gross Motor Function Measure Dimension-D (GMFM-D), gait velocity, and gait deviation index (GDI). Independent and paired T-tests and Fisher’s exact tests examined demographics and outcomes.
Results: The HIO-PT group (n = 58) group was older, had more osteotomies, lived closer, and included more youth at GMFCS III compared to a non-HIO-PT group (n = 233) (p < 0.01). Matched HIO-PT and non-HIO-PT groups showed significant one-year improvements in GDI (p < 0.01), and unchanged GMFM-D and gait speed, with no significant differences between-groups.
Conclusion:
Older youth with greater motor impairments and more surgical procedures were more likely to receive HIO-PT. Though not measured, we suspect this group had more severe acute decline, necessitating HIO-PT for equivalent biomechanical and mobility outcomes as the non-HIO-PT group at one year.
Multi-level surgery (MLS) can improve motor function and gait in youth with cerebral palsy (CP) though muscle strength and motor abilities decline in the early post-op phase. Physical therapy (PT) is recommended to help children regain strength and function. In outpatient settings, high-intensity doses of PT (≥ 3x/week) can improve motor function during early recovery. The benefits of high-intensity outpatient PT (HIO-PT) are not well-described. We examined referral trends and outcomes for youth who participated in postoperative HIO-PT compared to those who did not.
Participants and Methods: This IRB-approved retrospective study examined youth with spastic CP, MLS, age 4-21, Gross Motor Function Classification System (GMFCS) levels I-IV, and gait analyses. Outcome measures included the Pediatric Outcomes Data Collection Instrument (PODCI), Gross Motor Function Measure Dimension-D (GMFM-D), gait velocity, and gait deviation index (GDI). Independent and paired T-tests and Fisher’s exact tests examined demographics and outcomes.
Results: The HIO-PT group (n = 58) group was older, had more osteotomies, lived closer, and included more youth at GMFCS III compared to a non-HIO-PT group (n = 233) (p < 0.01). Matched HIO-PT and non-HIO-PT groups showed significant one-year improvements in GDI (p < 0.01), and unchanged GMFM-D and gait speed, with no significant differences between-groups.
Conclusion:
Older youth with greater motor impairments and more surgical procedures were more likely to receive HIO-PT. Though not measured, we suspect this group had more severe acute decline, necessitating HIO-PT for equivalent biomechanical and mobility outcomes as the non-HIO-PT group at one year.
Paper Number
699
Biography
Dr. Lennon is a physical therapist at Nemours Children Hospital Delaware. She has 35 years of experience, including work in gait analysis, rehabilitation, clinical research, program development, family engagement, community outreach, and professional education. She has authored 45 peer-revied papers and co-edited the second edition text Cerebral Palsy (2020). Her research in youth with CP includes evaluation of gait and mobility outcomes after orthopedic surgery, exercise testing, and physical activity evaluation. She is a member of the American Physical Therapy Association (APTA), American Academy of Cerebral Palsy and Developmental Medicine (AACPDM), and Gait and Clinical Movement Analysis Society (GCMAS).
Dr Simona Leone
National Center Of Services And Research For The Prevention Of Blindness And The Rehabilitation Of The Visually Impaired
Light table playing activities with parents: effects on visual function and eye-hand coordination in children with visual impairment
Abstract
Introduction
The purpose of this pilot study is to actively involve parents in the promotion of the development of visual skills and eye-hand coordination in children with visual impairment, due to CVI or ocular pathologies, through an habilitation training with light table and adapted material.
METHODOLOGY
Children aged 18 and 36 months with visual acuity <2/10 were recruited in 2 groups: CVI or ocular disease.
The assessment was performed before and after 6 months of training. It included:
- Visual function assessment
- Comprehensive ophthalmological examination
- Griffiths Scales of Child Development 3
- Peabody motor development scale- 2
- Parent stress index- short form questionnaire
The protocol involved parents and children at home, with at least 15 minutes of structured playing activities. Meetings were organized every 14 days, alternating on-site and online, to check the work carried out and also provide the new activities and materials. The games and activities were organized, using trasparent or reflecting tactile materials, according to child’s skills and age.
RESULTS
Eight children, 6 female, have been recruited and underwent the habilitation training. Mean age at the enrolment 29 months. After the training all showed improvements in visual acuity, contrast sensitivity, quality of ocular movements and eye-hand coordination. Parents reported a reduction of stress organizing daily activities for their children and more consciusness of their child’s abilities.
CONCLUSIONS
Playing with light table and adapted material improved children’s visual skills and eye-hand coordination. The involvement of parents in visual habilitation programs can enhance child-parent relationship.
The purpose of this pilot study is to actively involve parents in the promotion of the development of visual skills and eye-hand coordination in children with visual impairment, due to CVI or ocular pathologies, through an habilitation training with light table and adapted material.
METHODOLOGY
Children aged 18 and 36 months with visual acuity <2/10 were recruited in 2 groups: CVI or ocular disease.
The assessment was performed before and after 6 months of training. It included:
- Visual function assessment
- Comprehensive ophthalmological examination
- Griffiths Scales of Child Development 3
- Peabody motor development scale- 2
- Parent stress index- short form questionnaire
The protocol involved parents and children at home, with at least 15 minutes of structured playing activities. Meetings were organized every 14 days, alternating on-site and online, to check the work carried out and also provide the new activities and materials. The games and activities were organized, using trasparent or reflecting tactile materials, according to child’s skills and age.
RESULTS
Eight children, 6 female, have been recruited and underwent the habilitation training. Mean age at the enrolment 29 months. After the training all showed improvements in visual acuity, contrast sensitivity, quality of ocular movements and eye-hand coordination. Parents reported a reduction of stress organizing daily activities for their children and more consciusness of their child’s abilities.
CONCLUSIONS
Playing with light table and adapted material improved children’s visual skills and eye-hand coordination. The involvement of parents in visual habilitation programs can enhance child-parent relationship.
Paper Number
860
Biography
Orthoptist specializing in pediatric visual assessment and rehabilitation for children with central or peripheral visual impairments.
Dr Guy Letellier
EACD National Coordinator
Evaluating the safety of a robotic supine gait training device for pediatric rehabilitation — a retrospective study.
Abstract
Purpose: This study aimed to test a robotic supine gait training (RSGT) device's safety when treating children and adolescents with a variety of diagnoses, to ensure their safety and the standardization of clinical practices.
Methods: This retrospective observational study included 280 patients who underwent one or more treatment sessions with a RSGT device (DPA Med®) at the Nantes Regional Children's and Adolescent Health Care Center. These patients’
medical files, indexed in the digital medical file manager program, were examined in search of evidence of adverse events presumably associated with the treatment. The search also included when the adverse events took place, their severity,
the required treatment, and the clinical outcomes.
Results: From January 2, 2019, to June 1, 2021 (a 2.5-year period), no adverse events were logged, presumed, or definitively linked to the treatment, for any of the 280 patients included in this study (100% of the sample). Patients underwent
an average of 5.71 (standard deviation=7.06) treatment sessions, for a total of 1598 sessions during that period.
Conclusion: No adverse events linked to RSGTwere registered for the children and adolescents treated with the device in this preliminary study.
Methods: This retrospective observational study included 280 patients who underwent one or more treatment sessions with a RSGT device (DPA Med®) at the Nantes Regional Children's and Adolescent Health Care Center. These patients’
medical files, indexed in the digital medical file manager program, were examined in search of evidence of adverse events presumably associated with the treatment. The search also included when the adverse events took place, their severity,
the required treatment, and the clinical outcomes.
Results: From January 2, 2019, to June 1, 2021 (a 2.5-year period), no adverse events were logged, presumed, or definitively linked to the treatment, for any of the 280 patients included in this study (100% of the sample). Patients underwent
an average of 5.71 (standard deviation=7.06) treatment sessions, for a total of 1598 sessions during that period.
Conclusion: No adverse events linked to RSGTwere registered for the children and adolescents treated with the device in this preliminary study.
Paper Number
1075
Biography
Dr Guy Letellier is a paediatrician and paediatric rehabilitation specialist. He is head of department at a paediatric rehabilitation centre in Nantes, France. In this institution, congenital and acquired conditions are varied and treated with respect and innovation by an entire team.
He is the French representative for the EACD and president of the French-speaking paediatric palliative care network. He is committed to tackling challenges and finding solutions for the most vulnerable as well as the elites of our time.
Mr Paul Lindoewood
Coordinator
Share Our Story
Is Disability an integral part of humanity, or a tragedy that we need to accommodate?
Abstract
Introduction
For many people with lived experience of disability, their condition is just the way they are. As more medical responses to individual conditions become possible, we need to ask; where are we going in our discussions and how far have we bought into the historical and cultural understanding that “Disability is a Bad Thing” ?
Methods
The presenters will draw on surveys and discussions from the experiences of people with intellectual impairments in Kenya and those from Share Our Story (#SOS) - a forum of people with disabilities from Wales and 11 African countries who discuss their lived experiences and how they may effect change.
Results
Perspectives from people with lived experiences of disability describe the degree to which medicalisation of their conditions has helped or hindered the progress of their lives. Drawing from these perspectives, we ask how best the medical profession can engage with people with disabilities to address the concept of their condition being a tragedy.
Reflections
1. Is disability always a ‘bad thing’? and if so, why?
2. How does the direct experience of people with disabilities challenge the commonly held perceptions held within our modern society?
3. Why is this important for health professionals reframing their approach to people with disabilities?
For many people with lived experience of disability, their condition is just the way they are. As more medical responses to individual conditions become possible, we need to ask; where are we going in our discussions and how far have we bought into the historical and cultural understanding that “Disability is a Bad Thing” ?
Methods
The presenters will draw on surveys and discussions from the experiences of people with intellectual impairments in Kenya and those from Share Our Story (#SOS) - a forum of people with disabilities from Wales and 11 African countries who discuss their lived experiences and how they may effect change.
Results
Perspectives from people with lived experiences of disability describe the degree to which medicalisation of their conditions has helped or hindered the progress of their lives. Drawing from these perspectives, we ask how best the medical profession can engage with people with disabilities to address the concept of their condition being a tragedy.
Reflections
1. Is disability always a ‘bad thing’? and if so, why?
2. How does the direct experience of people with disabilities challenge the commonly held perceptions held within our modern society?
3. Why is this important for health professionals reframing their approach to people with disabilities?
Paper Number
1266
Biography
Paul Lindoewood is 68 and experiences cerebral palsy. Working for many years in the UK independent living movement, Paul also spent 9 years developing disability services in Kenya. After returning to the UK, he started Disability in Wales and Africa, currently in the process of becoming Share Our Story (#SOS).
In addition to his international work, Paul is an active member of Disability Wales. His lived experience and general observations leads him to question the assumption that disability is inevitably a tragedy believing that this undermines his social inclusion, providing an unhelpful backdrop. He is married with two adult children.
Dr Sally Lindsay
Holland Bloorview Kids Rehabilitation Hospital
Experiences and factors affecting poverty among families raising a child with a disability.
Abstract
Introduction: Children with disabilities and their families are more likely to live in poverty than those without a disability. However, little is known about their lived experiences and the circumstances that influence their socio-economic condition. The aim of this study was to understand the experiences and factors affecting poverty among families raising children with disabilities
Participants and methods: A scoping review was conducted while searching eight international databases (Embase, Healthstar, Medline, PsycINFO, Econlit, Scopus, Web of Science, and Sociological Abstracts). About 2351 articles were independently screened, and 48 studies met the inclusion criteria.
Results: The 48 studies included in the review involved 18 countries over a 26-year period. Our findings highlight the following key trends: (1) rates and extent of poverty, (2) types of poverty (i.e., material hardship, cost burdens, food insecurity), and (3) factors affecting poverty among children and youth with disabilities and their families (i.e., type and severity of disability, age, race/ethnicity, single-parent households, employment status, education, financial supports, type of health insurance, and community and societal factors).
Conclusion: There is an urgent need for anti-poverty policies, interventions and resources to help support families raising a child with a disability. Clinicians should consider the risk of exposure to poverty among families raising a child with a disability and the potential impact this could have on their access to health.
Participants and methods: A scoping review was conducted while searching eight international databases (Embase, Healthstar, Medline, PsycINFO, Econlit, Scopus, Web of Science, and Sociological Abstracts). About 2351 articles were independently screened, and 48 studies met the inclusion criteria.
Results: The 48 studies included in the review involved 18 countries over a 26-year period. Our findings highlight the following key trends: (1) rates and extent of poverty, (2) types of poverty (i.e., material hardship, cost burdens, food insecurity), and (3) factors affecting poverty among children and youth with disabilities and their families (i.e., type and severity of disability, age, race/ethnicity, single-parent households, employment status, education, financial supports, type of health insurance, and community and societal factors).
Conclusion: There is an urgent need for anti-poverty policies, interventions and resources to help support families raising a child with a disability. Clinicians should consider the risk of exposure to poverty among families raising a child with a disability and the potential impact this could have on their access to health.
Paper Number
22
Biography
Dr. Sally Lindsay is a Senior Scientist at Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital and a Professor in the Department of Occupational Science and Occupational Therapy, University of Toronto. She leads the transitions and inclusive environments (TRAIL) lab. She is an elected into the College of New Scholars, Artists and Scientists of the Royal Society of Canada. She recently held an Early Researcher Award from the Ontario Ministry of Innovation for her work on improving employment for people with disabilities.
Dr Sally Lindsay
Holland Bloorview Kids Rehabilitation Hospital
Applying an intersectional ecological framework to understand the experiences of ableism and racism in employment among youth with multiple minoritized identities.
Abstract
Introduction: Youth with disabilities often face many barriers in finding employment. A knowledge gap exists surrounding the experiences of racially minoritized youth with disabilities who arguably encounter multiple and complex forms of discrimination. The purpose of this study was to understand the experiences of ableism and racism in employment among racially minoritized youth and young adults with non-apparent disabilities.
Participants and methods: Individual semi-structured interviews were conducted with 19 racially minoritized participants aged 17-30 (mean age 23.5 years; 13 women, 3 men, 3 non-binary) with non-apparent disabilities (e.g., autism, learning disability, hearing loss, other hidden disabilities). Participants were from a large urban, multicultural Canadian city. Data were analyzed using a deductive thematic analysis approach informed by an intersectional ecological framework.
Results: Themes that affected racially minoritized youth’s employment included: (1) microsystems (i.e., individual barriers and facilitators to employment); (2) mesosystems (i.e., peers, family, disability, race/ethnicity, and work); (3) exosystems (i.e., workplace policies, healthcare system, educational institutions, community organizations); (4) macrosystems (i.e., ableism, racism, gendered discrimination and intersectional forms of discrimination); (5) the chronosystem (i.e., timing of obtaining employment, diagnosis and discrimination); and (6) ecological niche, which involved the extent to which work environments were safe and inclusive.
Conclusion: Clinicians and service providers should develop and implement more tailored supports to optimize the employment outcomes and work experiences for youth with multiple minoritized identities. Clinicians should consider their own potential biases to help improve health delivery and outcomes for marginalized clients.
Participants and methods: Individual semi-structured interviews were conducted with 19 racially minoritized participants aged 17-30 (mean age 23.5 years; 13 women, 3 men, 3 non-binary) with non-apparent disabilities (e.g., autism, learning disability, hearing loss, other hidden disabilities). Participants were from a large urban, multicultural Canadian city. Data were analyzed using a deductive thematic analysis approach informed by an intersectional ecological framework.
Results: Themes that affected racially minoritized youth’s employment included: (1) microsystems (i.e., individual barriers and facilitators to employment); (2) mesosystems (i.e., peers, family, disability, race/ethnicity, and work); (3) exosystems (i.e., workplace policies, healthcare system, educational institutions, community organizations); (4) macrosystems (i.e., ableism, racism, gendered discrimination and intersectional forms of discrimination); (5) the chronosystem (i.e., timing of obtaining employment, diagnosis and discrimination); and (6) ecological niche, which involved the extent to which work environments were safe and inclusive.
Conclusion: Clinicians and service providers should develop and implement more tailored supports to optimize the employment outcomes and work experiences for youth with multiple minoritized identities. Clinicians should consider their own potential biases to help improve health delivery and outcomes for marginalized clients.
Paper Number
19
Biography
Dr. Sally Lindsay is a Senior Scientist at Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital and a Professor in the Department of Occupational Science and Occupational Therapy, University of Toronto. She leads the transitions and inclusive environments (TRAIL) lab. She is an elected into the College of New Scholars, Artists and Scientists of the Royal Society of Canada. She recently held an Early Researcher Award from the Ontario Ministry of Innovation for her work on improving employment for people with disabilities.
Mrs Clare Grodon
Whittington Health NHS Trust
Implementing the results of research has changed practice in a special-school. Utilising data from the heROIC study has improved activity levels and outcomes by using the Innowalk Pro regularly.
Abstract
Introduction: Children with severe cerebral palsy (CP) can find it difficult to access equipment that allows them to exercise effectively, potentially impacting their quality of life (QOL).
This study explored whether the Innowalk Pro, could influence QOL in children with CP, measured by the CPCHILD questionnaire, alongside range of movement and spasticity of the lower limbs, and functional goals, measured by goniometry, modified Tardieu scale and goal attainment scoring (GAS). This presentation evaluates how a special school now implements the Innowalk-Pro alongside education.
Participants and Methods:
Twenty-seven participants aged 5-18 years with a diagnosis of CP GMFCS IV/V. The Innowalk-Pro was used four times a week for 30-minutes alongside routine physiotherapy in a school setting over a six-week period. Outcomes were evaluated immediately pre/post intervention and at six-weeks and three-months post intervention. Analysis further explored differences between primary and secondary age participants. REC reference: 19/LO/1721.
Results: QOL improved in 36% of participants, the majority being secondary-aged. GAS improved in 88% of participants immediately post-intervention, with 21% declining by two or more units after three months. This has shaped how we prescribe the Innowalk-Pro positively within school.
Conclusions: A six-week course of the Innowalk-Pro can improve QOL and GAS for children with CP aged 5-18years. After a break of 6-12 weeks, goals tend to return to baseline. Given the known benefits of exercise this research has now shaped how we utilise the Innowalk-Pro in an education setting and how it benefits the service users with a block on/block off approach.
This study explored whether the Innowalk Pro, could influence QOL in children with CP, measured by the CPCHILD questionnaire, alongside range of movement and spasticity of the lower limbs, and functional goals, measured by goniometry, modified Tardieu scale and goal attainment scoring (GAS). This presentation evaluates how a special school now implements the Innowalk-Pro alongside education.
Participants and Methods:
Twenty-seven participants aged 5-18 years with a diagnosis of CP GMFCS IV/V. The Innowalk-Pro was used four times a week for 30-minutes alongside routine physiotherapy in a school setting over a six-week period. Outcomes were evaluated immediately pre/post intervention and at six-weeks and three-months post intervention. Analysis further explored differences between primary and secondary age participants. REC reference: 19/LO/1721.
Results: QOL improved in 36% of participants, the majority being secondary-aged. GAS improved in 88% of participants immediately post-intervention, with 21% declining by two or more units after three months. This has shaped how we prescribe the Innowalk-Pro positively within school.
Conclusions: A six-week course of the Innowalk-Pro can improve QOL and GAS for children with CP aged 5-18years. After a break of 6-12 weeks, goals tend to return to baseline. Given the known benefits of exercise this research has now shaped how we utilise the Innowalk-Pro in an education setting and how it benefits the service users with a block on/block off approach.
Paper Number
153
Biography
Clare is the physiotheapy lead at Richard Cloudesley Special school in central London. She is passionate about improving outcomes for the young people within the school. She has completed her own research which was published in 2023: The heROIC Trial: Does the use of a Robotic rehabilitation trainer (RRT) change QOL, ROM & functional goals In children with CP?
Dr Carly Luke
Senior Research Physiotherapist
Queensland Cerebral Palsy and Rehabilitation Research Centre, University of Queensland
Beyond Cerebral Palsy: early neuromotor tools show promising potential in identifying high-likelihood of Autism
Abstract
Introduction: Differences in early infant neuromotor behaviours may serve as key biomarkers for neurodiverse outcomes, including autism. We investigated the transdiagnostic potential of Prechtl’s General Movements Assessment (GMA), with associated optimality scoring (MOS-R), and the Hammersmith Infant Neurological Examination (HINE) to predict a high likelihood of autism at 12 months.
Participants and methods: A prospective cohort of 127 infants (57% male; mean gestational age 33.6 weeks) were screened using GMA and MOS-R (3–5 months) and/or HINE (4–9 months).Infant 12-month outcomes were classified according to development (PDMS-2, BSID-III, ASQ-3) and likelihood of autism (Social Attention Communication Surveillance-revised) as developmentally ‘on track’ (TD) or confirmed/high-likelihood of (i) autism or (ii) CP. Logistic regression and Fisher’s exact test evaluated associations between screening and outcomes. Infants with non-specific delays (n=30) were excluded.
Results: Infants were classified as TD(n=55), high-likelihood of autism(n=33) and CP(n=13, 4 co-occurring autism). Total 84(87%) completed MOS-R, 87(90%) HINE and 77(80%) both. Each 1-point decrease on MOS-R and HINE increased odds of high-likelihood autism (MOS-R:OR=1.34, 95%CI: 1.06–1.69; HINE:OR=1.18, 1.09–1.28) and CP (MOS-R:OR=1.71, 1.34–2.17; HINE:OR=1.47, 1.22–1.79). Lower HINE subsection scores on ‘movements’(OR=1.78, 1.06-2.91) and ‘reflexes and reactions’(OR=1.22, 1.02-1.45) were associated with high-likelihood of autism. MOS-R features were significantly associated with specific neurodevelopmental outcomes, stiff, tremulous and circular arm movements (CP, p<0.01), flat posture (autism, p=0.03) and smiles, hand-to-hand, variable finger movements and head midline (TD, p<0.001-0.04).
Conclusion: MOS-R and HINE demonstrate promising transdiagnostic potential for identifying high-likelihood of autism, promoting equitable, timely access to therapy for infants with neurodevelopmental differences or neurodiversity.
Participants and methods: A prospective cohort of 127 infants (57% male; mean gestational age 33.6 weeks) were screened using GMA and MOS-R (3–5 months) and/or HINE (4–9 months).Infant 12-month outcomes were classified according to development (PDMS-2, BSID-III, ASQ-3) and likelihood of autism (Social Attention Communication Surveillance-revised) as developmentally ‘on track’ (TD) or confirmed/high-likelihood of (i) autism or (ii) CP. Logistic regression and Fisher’s exact test evaluated associations between screening and outcomes. Infants with non-specific delays (n=30) were excluded.
Results: Infants were classified as TD(n=55), high-likelihood of autism(n=33) and CP(n=13, 4 co-occurring autism). Total 84(87%) completed MOS-R, 87(90%) HINE and 77(80%) both. Each 1-point decrease on MOS-R and HINE increased odds of high-likelihood autism (MOS-R:OR=1.34, 95%CI: 1.06–1.69; HINE:OR=1.18, 1.09–1.28) and CP (MOS-R:OR=1.71, 1.34–2.17; HINE:OR=1.47, 1.22–1.79). Lower HINE subsection scores on ‘movements’(OR=1.78, 1.06-2.91) and ‘reflexes and reactions’(OR=1.22, 1.02-1.45) were associated with high-likelihood of autism. MOS-R features were significantly associated with specific neurodevelopmental outcomes, stiff, tremulous and circular arm movements (CP, p<0.01), flat posture (autism, p=0.03) and smiles, hand-to-hand, variable finger movements and head midline (TD, p<0.001-0.04).
Conclusion: MOS-R and HINE demonstrate promising transdiagnostic potential for identifying high-likelihood of autism, promoting equitable, timely access to therapy for infants with neurodevelopmental differences or neurodiversity.
Paper Number
601
Biography
Dr Carly Luke is a Senior Research Physiotherapist and Post Doctoral Research Fellow with the Queensland Cerebral Palsy and Rehabilitation Research Centre, the University of Queensland. With over 15 years of clinical experience, her work is focused on delivering care to infants with an increased likelihood of cerebral palsy and other neurodevelopmental delays and neurodiverse outcomes. Her research interest is focused on understanding early infant neuromotor behaviours and developmental trajectories to determine early biomarkers for CP and other neurodevelopmental differences or diverse outcomes.
Chair
Prof
Kate Himmelmann
University Of Gothenburg